Stronger together

HAE S.A. works hand-in-hand with medical professionals, pharmaceutical companies and other support organisations. We believe that together, we can maximise the benefit to our patients.

HAE International (HAEi) is a global non-profit network of patient associations dedicated to improving the lives of people with HAE.

HAE S.A. is one of 93 member countries supported by HAEi, which provide member organisations with specially designed tools and technical assistance that promote disease education and support activities addressing the unique needs of HAE patients and their families.

The UCT Lung Institute department of Allergy and Immunology, under the guidance of Prof. Jonny Peter and his team, have a special interest in the treatment of HAE and have been instrumental in continuous education and the procurement of new medications for South African patients.

The Allergy Foundation of South Africa strives to enhance the quality of life and to reduce the cost of healthcare for South Africans suffering from allergic disorders and primary immune deficiencies.

Headed by Prof. Mike Levin, the team at AFSA continue to make an invaluable contribution towards the education and awareness of HAE in our country.

Rare Diseases South Africa (RDSA) is a non-profit organisation advocating to ensure that people living with rare diseases and congenital disorders experience greater recognition, support, improved health service and better overall quality of life. HAE S.A. is one of over 200 member support groups under the RDSA banner, working together to reach the RDSA vision of readily accessible care and support for all those affected by rare diseases.

Membership is free and RDSA members benefit from regular updates on the South African rare-disease landscape, access to a closed FB group, access to educational resources, emotional support as well as counselling. We encourage all of our patients and caregivers to register for membership in order to increase our representation in the rare disease community.

The Sinovuyo South African Virtual Angioedema Centre in Cape Town is the first of its kind in Africa.The centre is virtual and online, utilizing a proprietary international-designed cloud-based platform. The expert independent specialist team at the virtual centre offers advice and support for patients with hereditary and other forms of angioedema; their families and carers; medical practitioners; as well as nurses caring for angioedema patients.