HAEi YOUNGSTERS
THE BRADY CLUB
The Brady Club is an online, secure platform for children ages 4-12 diagnosed with HAE as well as their siblings. This page is for our youngest members to enjoy fun activities that help them understand, manage, and cope with HAE, while inspiring them and connecting them with their peers.
Kids can join Brady the Bear for fun and interactive activities that teach about living with HAE. They will also be able to upload their artwork, share their own stories, and play Brady’s matching game.
A series of fun and interactive HAE activities for children
to enjoy while also learning about HAE are included.
The activities are divided into three sections:
• Brady Club Learning
• Brady Club Vocabulary
• HAEA Children’s Book Series Learning Activities
To access the activities, simply register or log-in to the Brady Club website.
Kids can join Brady the Bear for fun and interactive activities that teach about living with HAE. They will also be able to upload their artwork, share their own stories, and play Brady’s matching game.
A series of fun and interactive HAE activities for children
to enjoy while also learning about HAE are included.
The activities are divided into three sections:
• Brady Club Learning
• Brady Club Vocabulary
• HAEA Children’s Book Series Learning Activities
To access the activities, simply register or log-in to the Brady Club
website.
Sophie and her Swollen Hand
This book has been written to help introduce younger children to hereditary angioedema. It is aimed at children who have recently been diagnosed with HAE and can be used to help explain the condition to siblings, young relatives and friends. The story is centred on Sophie, a school-age child who has symptoms of HAE and is diagnosed based on a family history of the condition.
The Rare Boy and The Talkative Little Balloon
HAEi Regional Patient Advocate, Natasa Angjeleska, has written a children’s book about a boy with HAE who gets help from a Talkative Little Balloon. Reading the book with your child makes a good starting point for a discussion about what HAE is all about.
HAEi Youngsters
The HAEi Youngster’s Community was formed to support, motivate, and educate the younger generation of HAE patients as well as their families and friends. HAEi has a variety of tools and resources tailored to help youngsters through life with HAE.
Whether you are newly diagnosed, starting school, university, or starting a new job, the HAEi Youngster’s Community has a variety of tools to help you along the way.
Membership is free and open to HAE patients, family members, caregivers and friends who are already part of their country’s HAE member organization and aged between 13-25.
TOOLKIT
