Why do we exist?

Many patients go for years trying to get a diagnosis, never having contact with anyone who understands what it is like living with this condition.

At HAE South Africa, we understand the physical and emotional impact of living with this disorder and we are here to support you along this journey.

Let us know how we can help you

Why do we exist?

Many patients go for years trying to get a diagnosis, never having contact with anyone who understands what it is like living with this condition.

At HAE South Africa, we understand the physical and emotional impact of living with this disorder and we are here to support you along this journey.

Let us know how we can help you

Do you know what HAE is and how to treat it?

Learn more about HAE

Do you know what HAE is and how to treat it?

Learn more about HAE

Do you or your patient experience uncomfortable and painful episodes of swelling?

Learn more

Do you or your patient experience uncomfortable and painful episodes of swelling?

Learn more

Who are we?

Who are we?

HAE S.A. is a non-profit advocacy group for patients with HAE and their families. Our organisation was established by a small group of patients and caregivers in 2016.


We work closely with physicians and researchers equally committed to raising awareness, improving time to diagnosis, and advocating for better treatment options. We empower our patients and the medical community through education, and provide emotional and personal support for patients and caregivers.

Meet our team here
HAE S.A. is a non-profit advocacy group for patients with HAE and their families. Our organisation was established by a small group of patients and caregivers in 2016.


We work closely with physicians and researchers equally committed to raising awareness, improving time to diagnosis, and advocating for better treatment options. We empower our patients and the medical community through education, and provide emotional and personal support for patients and caregivers.

Meet our team here

Join our family

Members benefit from the support and experiences of HAE patients and caregivers.

  • Referrals to specialist physicians

  • Patient & Carer meet-ups

  • Information & educational resources

  • Peer-to-peer support

  • Social Media pages

  • WhatsApp support groups

  • Access to the global HAEi network

Join us
Together we’re stronger

HAE South Africa works closely with medical professionals, pharmaceutical companies and other support organisations to maximise the benefit to our patients.

Learn more about our partners and how they help us empower patients, here.